Tag: cure

  • Diversity is Elusive in Rare Disease Research

    Diversity is Elusive in Rare Disease Research

    Only 10% of rare diseases have an FDA-approved therapy. This sobering statistic highlights why research is so imperative for patients with rare diseases. Clinical trials can be a crucial opportunity to access life-saving treatments. However, African-American, African-Canadian and Latino patients with rare diseases face significant underrepresentation in clinical trials. This lack of representation results in drugs…

  • Touching Is Our First Form Of Communication

    Touching Is Our First Form Of Communication

      The moment we become parents we use our sense of touch to communicate with our brand new baby.  I will never forget that first moment in my each of my babies lives, when they started to experience and explore the world completely independently of me.  The first thing I did was reach out to…